RPLA Studies
RPL Community Registry
Goal: The RPL Community Registry aims to support RPL research by:
- Providing anonymized data for doctors and scientists conducting research into the causes of, and treatments for, recurrent miscarriage
- Connecting interested patients with relevant research studies, while protecting their privacy
- Educating families, healthcare providers, and others about RPL
What's Involved: Answering health surveys online
Location: You can join the RPL Community Registry from any location, US and International. However, currently all surveys are in English.
Eligibility: The RPL Community Registry is open to any individual, 18 years of age or older, who self reports having experienced two or more pregnancy losses/miscarriages.
Primary Investigator: Recurrent Pregnancy Loss Association
Contact: Please email info@rplassocation.org if you have questions.
The HOPE Project
Goal: The goal of The HOPE Project (Harness multiple Opportunities for Pregnancy loss Exploration) is to find explanations of pregnancy loss and learn how we can predict future pregnancy outcomes.
What's Involved: The HOPE Project includes multiple studies, what's involved will vary.
Location: You can join the HOPE registry from any location, but some of the studies require travel to Stanford, University of California at San Francisco (UCSF), or Oregon Health and Science University (OHSU)
Eligibility: The first step is enrolling in the HOPE registry. After that you will be able to learn more about specific studies that you are eligible for.
Primary Investigator: Ruth Lathi, MD
Contact: Project email, rei-research@list.stanford.edu
Genetics of Recurrent Pregnancy Loss Study
Goal: Identification of genetic causes of RPL
What's Involved: Genetic evaluation of miscarriage tissue
Location: University of Pittsburgh
Eligibility:
- Unexplained RPL (2 or more losses with no discernable cause)
- Women of reproductive age up to 37
- Currently not pregnant
- Participation of both partners
Primary Investigator: Svetlana Yatsenko, MD
Contact: Jessica Settino, settinoj@upmc.edu or 412-641-7457
ALOE: Pregnancy Loss Research Study
Goal: To understand how pregnancy loss affects couples' sexuality and relationships.
What's Involved: Completion of an online survey
Eligibility:
- Have experienced a pregnancy loss within the past 4 months
- Have been in a relationship with your partner for 1+ years
- Are NOT currently receiving fertility treatment
Primary Investigators:
- David Allsop, Ph.D. Student (Dalhousie University)
- Natalie Rosen, Ph.D., R. Psych. (Dalhousie University & IWK Health Centre)
- Heather Cockwell, MD, FRCSC (Dalhousie University & IWK Health Centre)
Contact: aloe@dal.ca
Tommy's Miscarriage Research
We encourage those in the UK to check out Tommy's. They conducting fantastic research and doing a lot of work to improve treatment practices.