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Recurrent Pregnancy Loss Association Awareness. Advocacy. Answers.
The HOPE Registry
Goal: The HOPE Registry (Harness multiple Opportunities for Pregnancy loss Exploration) is a nationwide study focused on better understanding the predictors of pregnancy outcomes and potential underlying genetic causes of pregnancy loss.
What's Involved: For the main study, participants are asked to complete a survey and provide either an optional saliva or blood sample. Participants may also be invited to join additional study cohorts based on eligibility.
Patients with recent euploid miscarriages or stillbirth may be invited to participate in in-depth sequencing with the option to receive their result.
Location: Anywhere in the US or Canada.
Eligibility:
- You are over the age of 18
- You live in the US or Canada
- You have experienced at least one pregnancy loss at any gestational age
Primary Investigator: Ruth Lathi, MD
Contact: hopestudy@stanford.edu
The GPRPL Study
Goal: The goal of the GPRPL Study (Genomic Predictors of Recurrent Pregnancy Loss) is to find new genetic causes for recurrent pregnancy loss.
What's Involved: A blood sample from you and your partner, a tissue sample from your lost pregnancy, access to your medical records, and a potential clinical evaluation.
Location: The primary research team is at Yale, participants are being recruited from multiple sites across the US, please reach out to the research contact below to determine eligibility.
Eligibility: Couples who are having (or have recently had) their second+ pregnancy loss before 20 weeks' gestation.
Primary Investigator: Yong-Hui Jiang, MD
Contact: Dr. Winifred Mak, makw@uthscsa.edu
Sperm RPL Study
Goal: To determine if there is a connection between sperm and RPL
What's Involved: Completion of a general health questionnaire (both partners) and semen collection (1 to 2 samples)
Location: The primary research team is at UT Health Austin, participants are being recruited from multiple sites across the US, please reach out to the research contact below to determine eligibility.
Eligibility: Couples who have had two or more pregnancy losses and the cause is unknown.
Primary Investigator: Winifred Mak, MD, PhD
Contact: Dr. Winifred Mak, makw@uthscsa.edu
The Pregnancy Research Project
Goal: To help researchers learn more about healthy pregnancies and poor pregnancy outcomes
What's Involved:
- Completion of a survey about your pregnancy experience and newborn outcomes. (Note: If you are currently pregnant, you may be asked to return and complete another survey later in your pregnancy and after delivery.)
- (Optional) Sharing of your prenatal and delivery records.
Location: Information for this project is collected digitally, so participants can join from any location.
Eligibility:
- You are 18 years of age or older
- You have had a stillbirth (pregnancy loss at or after 20 weeks gestation), OR
- You have delivered a living baby within the last five years, OR
- You are currently pregnant at 12 weeks gestation or more.
Primary Investigator: Star Legacy Foundation (in partnership with University of Michigan)
Contact: research@startlegacyfoundation.org
Genetics of Recurrent Pregnancy Loss Study
Goal: Identification of genetic causes of RPL
What's Involved: Genetic evaluation of miscarriage tissue
Location: University of Pittsburgh
Eligibility:
- Unexplained RPL (2 or more losses with no discernable cause)
- Women of reproductive age up to 37
- Currently not pregnant
- Participation of both partners
Primary Investigator: Svetlana Yatsenko, MD
Contact: Jessica Settino, settinoj@upmc.edu or 412-641-7457
Tommy's Miscarriage Research
We encourage those in the UK to check out Tommy's. They conducting fantastic research and doing a lot of work to improve treatment practices.