Signed in as:
filler@godaddy.com
Recurrent Pregnancy Loss Association Awareness. Advocacy. Answers.
RPL Community Registry
A registry is an organized system that collects and stores standardized data on people with specific conditions.
This type of data can define the progression of a condition, help uncover new areas to research and ultimately support the development of new treatments. Most importantly, it enriches the dialogue between patients and providers and gives patients a "seat at the table" when it comes to research.
A registry is a critical tool to enable recurrent pregnancy loss research.
After careful evaluation, RPLA will be launching the new RPL Community Registry on the IAMRARE Platform, powered by NORD. It is a mobile-friendly platform that has been time tested, and the best part is we, the patient community, are in control of the data and how it gets used.
Target launch is early 2026. Until then, we ask you to complete this Google Form so that RPLA can keep you updated about new research opportunities and make sure you are informed when the RPL Community Registry is live.
Copyright © 2022 Recurrent Pregnancy Loss Association - All Rights Reserved.