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      • People
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      • Facts & Figures
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      • For Patients
      • For Friends & Family
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      • For Researchers
      • For Patients
      • Funded Research
      • RPL Community Registry
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Recurrent Pregnancy Loss Association

Recurrent Pregnancy Loss Association Awareness. Advocacy. Answers.

Recurrent Pregnancy Loss Association Awareness. Advocacy. Answers. Recurrent Pregnancy Loss Association Awareness. Advocacy. Answers. Recurrent Pregnancy Loss Association Awareness. Advocacy. Answers.

Your Participation Matters

RPL Community Registry

Join Now

Together We Can Change the Story

"Unexplained" is Unacceptable

We envision a future where recurrent pregnancy loss (RPL) is eliminated and individuals are empowered to make informed healthcare and family building decisions. 


The RPL Community Registry supports this by: 

  • Providing anonymized data for doctors and scientists conducting research into the causes of, and treatments for, recurrent miscarriage
  • Connecting interested patients with relevant research studies, while protecting their privacy.
  • Educating families, healthcare providers, and others about RPL.


Data from the RPL Community Registry may generate new hypotheses to test, improve care practices, or get us closer to understanding why recurrent pregnancy loss happens and how it can be prevented.


Your participation supports not only your own health, but the health of many others who have experienced or will experience multiple pregnancy losses. 

"Alone we can do so little. Together we can do so much."


Helen Keller

Participation is Simple and Free

1. Join the RPL Community Registry on LunaDNA

Use our personal registration link to create a profile on the LunaDNA platform and complete the two-factor authentication process.  


The RPL Community Registry is open to individuals 18 or older who have carried and lost two or more pregnancies.  Residents of countries outside the United States may be able to join based on their national privacy regulations.

2. Start Taking Available Surveys

Any studies (surveys) you are eligible for will show up on your LunaDNA home page.  You can complete them all at once or over time as you have availability.   You can also choose to participate in some surveys and not others.  It's always up to you!

3. Check Regularly for Emails from LunaDNA

Because your information is private, RPLA will never contact you directly about the registry.  Researchers and other collaborators will also be unable to contact you directly. All communication will come through the LunaDNA portal, where you can configure your notification preferences.  We will use this to let you know about new surveys or research opportunities and to share the results of studies you've participated in.  

Sign up takes less than 5 minutes.  We promise.  

Watch our founder complete the process in the video below. 

Join Now

Your Privacy is Important

You Are Always in Charge of Your Data

RPLA understands that your health information is private.  The RPL Community Registry is completely confidential.  You own your data every step of the way and can delete it at any time.  


The registry is hosted on LunaDNA.   LunaDNA is HIPAA (Health Insurance Portability and Accountability Act) and GDPR (General Data Protection Regulation ) compliant, following both U.S. and E.U. privacy regulations.  The LunaDNA platform allows you to answer questionnaires with state-of-the-art privacy and security.  RPLA and researchers will never see your name, email or other personal identifying information.  All of our communication with you related to the RPL Community Registry is through the LunaDNA platform.  


Moreover, you can view, download or delete your profile at any time, and your data cannot be shared outside of the platform without your permission.  That means that your data is in your hands every step of the way.  

Frequently Asked Questions

What is the Goal of the Registry?

What is the Goal of the Registry?

What is the Goal of the Registry?

The goal of the registry is to understand the characteristics of recurrent pregnancy loss to enable investigations into the causes and treatments of multiple miscarriage.

Who is Eligible to Join?

What is the Goal of the Registry?

What is the Goal of the Registry?

Currently, we are enrolling individuals who have themselves carried and lost multiple pregnancies.  However,  we may deploy surveys within the system to ask questions about those individuals' partners. 

How Much Time Will This Take?

What is the Goal of the Registry?

How Much Time Will This Take?

Our goal is to keep every survey below 10 minutes (some will take less time than others).  All initial surveys will be based on your memory  of your experience.  You won't need to reach out to your doctor or request medical records. 

How is the Registry Funded?

How is My Information Protected?

How Much Time Will This Take?

The registry is fully funded by donations made to Recurrent Pregnancy Loss Association (RPLA).  We have worked with Genetic Alliance, a 501c3 nonprofit organization, to guide us in the process of structuring our registry. 

How is My Information Protected?

How is My Information Protected?

How is My Information Protected?

All data is stored within the LunaDNA platform which complies with U.S. and E.U. privacy regulations and implements the latest data security protocols. Click HERE to learn more.

How is My Information Used?

How is My Information Protected?

How is My Information Protected?

Analysis of pooled survey data occurs within the LunaDNA system.  All personal information is removed before analysis occurs. Your data is never sold, and it cannot leave the system unless you allow it. 

Registry Partners


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RPL Community Registry

We are thrilled to announce the launch of the RPL Community Registry - a first of its kind resource that will help accelerate progress towards understanding and treating recurrent miscarriage. 

Learn More